Posted on a brain tumor discussion forum: 

Anyone ever experience an elevated sed rate? Normal is 0-30 and mine is 126. Had shingles in August but such a mild case that was treated right away with valtrex and neurotin (still on the neurontin). Docs have run batteries of tests (more today) but they are stumped.

Having low hemoglobin levels too (8.8)


Sedimentation rate (sed rate) is a screening test for many different diseases.

Mayo Clinic hematologist Ruben Mesa, M.D., and colleagues answer select questions from readers.

Sedimentation rate also referred to as sed rate or erythrocyte sedimentation rate measures the speed at which red blood cells settle to the bottom of a glass tube. The presence of certain abnormal proteins in the blood can cause red blood cells to stick together and sink to the bottom more quickly.
An elevated sed rate is not specific to any one disease. Possible causes include:
Inflammatory diseases, such as rheumatoid arthritis and lupus
Blood cancers, such as leukemia and lymphoma
Cancer that has spread (metastasized)

An elevated sed rate may indicate an underlying problem. But further testing is needed to identify the cause of the problem.

    In severe cases of immune mediated hemolytic anemia, the immune destruction of red cells is so blatant that the red cells clump together (because their antibody coatings stick together) when a drop of blood is placed on a microscope slide. Imagine a drop of blood forming not a red spot but a yellow spot with a small red clump inside it. This finding is especially for boding.



Sedimentation Rate

The sedimentation rate (sed rate) blood test measures how quickly red blood cells (erythrocytes) settle in a test tube in one hour. The more red cells that fall to the bottom of the test tube in one hour, the higher the sed rate.

When inflammation is present in the body, certain proteins cause red blood cells to stick together and fall more quickly than normal to the bottom of the tube. These proteins are produced by the liver and the immune system under many abnormal conditions, such as an infection, an autoimmune disease, or cancer.

There are many possible causes of a high sedimentation rate. For this reason, a sed rate is done with other tests to confirm a diagnosis. Once a diagnosis has been made, a sed rate can be done to help check on the disease or see how well treatment is working.

My thoughts:

There are several wrong perceptions in medical science;

Looking only at whatever tumor shows up, as though it is the cause of all problems,
is a wrong view

Considering that it is an infection or lymphoma when high white blood cells show up,
is another fallacy

I suspect you recall a serious flu ... or several 'colds' congestion

I suspect you have enough symptoms of Chronic Fatigue Immune Dysfunction Syndrome
The Proper View of CFIDS, CFS, FM, ME

That you have the FATIGUE doctors are looking for, but don't find

I think you have this anemia, per your comments
But I assure you it doesn't show up the way doctors expect it to
Since you have doctors interested, please ask them to consider these other things

I suspect exposure to 2-butoxyethanol or BUTYL of some kind

Cancer secondary to THE Anemia? *
Find the Anemia *