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Question on red blood
cells:
I really need to know if
anyone with CFS or Fibro
have had trouble with
low red blood cells... I
just found out and I'm
doing the test for the
colon...I was wondering
is this another health
issue with CFS or
Fibro....I would
appreciate any
information...I'm just
glad I can log on and
ask others about health
concerns because it does
help
Kathy 9-17-04 |
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This may be a completely
different issue but in
Dr. Bell's book he says
"Some patients with
typical CFIDS will be
found to have low T4
counts (T helper
lymphocytes).
Granny |
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When you say "low red
blood cells" are you
talking about Iron
Deficiency Anemia?
Bernie |
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I have low red blood
cells. Even had a bone
marrow test done (WOW
painful!!) years ago,
because they thought i
might have some form of
leukemia or cancer. They
found my body makes the
red blood cells, but
something is killing
them or rather they are
dying prematurely so I'm
ALWAYS anemic. The only
thing is they keep
saying its NOT iron
deficiency. My body has
enough iron, enough
folic acid and i take
vitamins , supplements.
Just that they don't
know why.
Its not a serious issue
for me tho, except that
it contributes even more
to me being tired. Also,
when i have surgery it
gets rough. This last
May i had surgery and
had to stay in the
hospital extra days,
cause they weren't sure
if i was going to need a
transfusion or not cause
i think my level went
down to a 6. Stayed
there till it came back
up to a 9 which is still
very under but, not
danger wise. Also with
other surgeries or when
i had my son, ive needed
transfusions, because my
red blood cells are low
and if i bleed, oops
there they go.
Jen |
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Can you give a little
more info as to what
part of the blood cells
is low. What count?
MCV, Mchv, total RBC
etc. I have had
borderline anemia all my
life and have found out
I have macrocytic
anemia. Can I help
further.
Lerbea |
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No I'm not sure I was
told it was red blood
county was low and
anemia. I will find out
more on my next visit.
He just made sure it
wasn't passing through
my colon. I just figured
it was low due to
Fibro. Seems like
everything that can go
wrong has someway linked
with the fibro. Thanks
Kathy |
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1-23-05 We would all
like to know how you are
doing!
Have you had fatigue for
a LONG time?
The reason I ask is that
you can have
autoimmune hemolytic
anemia for a
long time WITHOUT it
showing up in the blood
counts.
If they check your
'retic rate'
it would probably be on
the low side
Go over this check-list,
fill it out, and fax or
mail it to the doctor's
office for your file.
Then you don't have to
remember to take it next
time you get an
appointment.
My perspective is from a
chemical exposure that
would do such a thing.
The literature says that
it causes hemolytic
anemia
and many other things,
too
I think it may be
the fatigue
that doctors are looking
for, but it hides out.
Do you have red blood
cells that are
immature? What is their
size, their shape and
what are the membranes
like? Do you have any
trace blood in urine, or
did you from the time
your fatigue started and
several years later?
Margaret Diann
e-mail |
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1-24-05
http://forums.about.com/n/mb/message.asp?webtag=ab-chronicfatig&msg=8322.7
A
groundbreaking study of biochemical markers
in the blood
of children with ME
*
'My fathers has been battling
myleoprolific disorder or
mylofibrosis for approx. 4 years
now. His spleen is extremely
enlarged due to his weekly
injections of 45,000 units of "EPO".
Unfortunately, this is the only
thing that will keep his red cell
count up.
My question is does anyone know of
anything that he can do, or take, to
help relieve the terrible itching
that he experiences constantly. He
will literally scratch himself until
he bleeds, the itch is that intense.
His doctor say that the itch is due
to his ill balanced blood chemistry.
Any suggestions would be greatly
appreciated!
SHAWN |
| "Let's hear
what our other participants have to
offer for itch"
Rashes, itch, etc are one way our
body has of complaining about too
much of some kind of chemical,
that's what I think.
Look at the list of the ways our
body can 'complain' When a lady
helped out with an oil spill drill
that had a small cleanup involved a
year ago, she lost her voice, now
she has even lost her gall bladder
(part of the big picture of what
2-butoxyethanol can do) AND did the
doctor think it might be a chemical
overexposure? He did a biopsy of
her vocal chords. She knew more
than most, because I had shared
about this chemical and learned that
her brother who was a painter died
of the blood damage extended effects
&/or the prostate cancer he was
being seen for ... just a year
prior.
PLUS a list of other things to
report to your doctor.
Look at the big picture
'Mother Margaret' |
| I
am 50 years, just diagnosed at the
Mayo clinic in Rochester,
Minnesota. Right now all I am
experiencing is the being tired all
the time from the lack of red blood
cells, the enlarged spleen, the lack
of appetite. The Mayo clinic was
very adamant about how dangerous a
bone marrow transplant is. My
biggest question is with all the
medical bills coming in after your
company's insurance has paid, what
do you do? They are very, very large
and like most of us I have no nest
egg, large savings account, or rich
relatives. I live from paycheck to
paycheck and barely make it on
that. I have a wife and 2 kids to
worry about and don't have any idea
where to get help. Anybody got any
ideas? Please and thank you.
Gerald |
My
mother has myelofibrosis with an
extreme itch. She had colon cancer
in '91 and soon after she quit the
chemo she developed this awful itch.
We tried everything and saw a number
of doctors. About a year ago or so
we discovered "neurontin." I think
it is for seizures. At any rate, she
has had great success with it. She
still itches occasionally and hates
showers but she has far fewer
episodes making it much more
tolerable. Hope this info helps you
too!
Her Dr. is considering removal of
her spleen because her blood counts
are very low. Can anyone tell me
their experience with this
procedure? She is 75 yrs old.
Thanks. CindyLee |
| I also have myleofibrosis for
over a year now and the only thing i
have taken medically for it is blood
transfusions. I sure need to find
out of any other medication that
will ease the number of
transfusions. Nick |
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My father was diagnosed with
mylofibrosis 2 years ago. last year
his spleen was removed at 61/2
pounds. he has taken a drug called
hydroxia but it quit working also he
has taken procrit shots but did not
help either. as of yesterday his
hemoglobin was 6.2 and they have my
father scheduled for a transfusion
this Friday. I wish there were other
alternatives my father really
doesn't like blood transfusions.
My father has been a brick layer
most all his life. I'm not
real sure how he got mylofibrosis.
but my understanding is that it is a
cancer in the bone marrow. yet they
say a bone marrow transplant is to
risky for him. other then that all I
know is they say there is no cure. I
am looking for any kind of hope that
there may be out there any info
would be most appreciated thanks.
Tonya 9-17-04 |
Tonya,
you
say
your
dad
was
a
brick
mason.
I
looked
up a
little
info
on
it
and
found
out
that
very
good
quality
chemicals
used
in
cleanup
of a
job
were
an
important
part
of
the
process.
That
they
are
put
into a
piece
of
equipment
(so
handling
full
strength
chemical)
and
then
are
sprayed
after
being
mixed
with
water.
If
the
chemicals
have
2-butoxyethanol
type
of
chemical,
realize
that
the
worst
exposure
is
the
vapors
in
one's
eyes.
We
do
not
often
see
the
'protective
equipment
as
using
air
tight
eye
goggles
One
of
the
conditions
you
mention
sounds
like
it
should
affect
the
white
and
platelet
cells
also.
Does your dad remember a time when eyes burned and hurt and his urine turned dark?
The autoimmune hemolytic anemia goes undiagnosed, I believe because it fools the basic blood info doctors take
It goes from a high number with an acute exposure to 2-butoxyethanol type chemicals ... and for years will be in normal range; and even when under normal rate for making new red blood cells, the other numbers can still look OK
Ask the age of red blood cells; their size and their shape
What are the membranes like?
They can test directly for this autoimmune hemolytic anemia, but they don't because, they don't think it is there.
I have no medical background. I just learned about this one chemical and have talked to a lot of people with known and suspected exposure to it. Thus I see what the patterns are
'Mother
Margaret'
e-mail
Why I learned
about 2-butoxyethanol
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http://forum.lef.org//default.aspx?f=41&m=17686&p=1#m22954 |
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