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A discussion today with a
young person and DFSP
father was a policeman -
he died of liver cancer age 50
Discussing DFSP
Hi,
I'm 32 and have just been diagnosed with DFSP and
know very little about this. I had the main tumour
for almost 17 years and it was always ignored by
doctors, despite me pleading to have it removed. I
am now under a plastic surgeon and having biopsies
and CT scan and all kinds of appointments. I have
been told that I have to have a large area of
shoulder tissue removed and skin or tissue grafted
over the wound but am still utterly bewildered by
what it all means. Does anyone have any knowledge of
this? My consultant tells me this is a low grade
cancer and there's no need to worry, yet also says
it has a high recurrence rate. Just hoping to hear
some success stories I guess and maybe anyone who
has had DFSP around the neck/shoulder to help
explain what removal involves and how it looks when
all done. Also, anyone who knows what they're
talking about cos the consultant says don't worry,
then pats me on the arm and looks all sympathetic!
Should I be worried??
Thanks.....
Could you tell me more about what
type of work your parents did and that you have
done? Do any of you recall a serious flu?
I think the bigger issue may be
an autoimmune one.
Ask the doctor for what stops the
body from becoming autoimmune.
How is my
parents work relevant?
My father was
a policeman and he died of liver cancer aged
50.
My mother was a secretary, then a teacher
and she has survived breast cancer. However
she has antiphospholipid syndrome and has
had several blood clots on her legs and
lungs. I have read somewhere that DFSP may
have a genetic link - is this right? Can it
be related to my mother's condition? I
have never had a serious flu. I do however
pick up lots of bugs and
seem to always have a
cold. The first consultant I saw
about my
DFSP told
me it may have been originally caused by an
insect bite and I was abroad the year it
first appeared. I have been given very
little information about this by doctors - I
had a biopsy 4 months ago and was only told
last week that it was cancer. I had 2
bioposies yesterday and am having a CT scan
next week. That's all I know!
Mom had autoimmune issue?
I look at things differently ....
and I think the medical profession should give
some consideration to a common chemical that can
cause many autoimmune issues.
So, consider a different view.
When you say you are always
having a 'cold' ... to me that would strongly
indicate ongoing exposure to a chemical such as
(or similar to) 2-butoxyethanol.
It causes loosening of the
sinuses ... and more exposure to this chemical
would cause a worsening of the effects you have
already & add more besides
What has happened with your
parents can indicate whether you have exposure
to such a chemical PRIOR to your conception
It is a teratogen chemical,
meaning it has an effect in some way or another
upon one's children. Maybe not precisely at
birth, but that might show up years later.
Liver & Kidneys and blood and
blood forming organs are particular targets for
this chemical along with Autoimmune Metabolic
Issues in particular.
What policemen do puts them at
high risk because they clean guns on a regular
basis (I think CLP has 2-butoxyethanol in it;
but the company has removed the
public MSDS on it) Now, Policemen are
hanging out together in the gun cleaning room
without air tight protective eye goggles. (Bad
idea). They are around others thought to be
drunk (who
may actually be poisoned by this chemical,
and breathing it out and exposing others to the
same chemical)
It is a HUGE problem, and there
are epidemic issues related to it; but as yet,
unrecognized
C6H14O2/CH3(CH2)2CH2OCH2CH2OH
This was
really a surprise finding for me:
VERY HIGH
White Blood Cell Counts
(advanced
anemia)
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Not just a virus or cold?
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Health
Changes like CFIDS after flu
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http://groups.msn.com/SoftTissueSarcomas/general.msnw?action=get_message&mview=1&ID_Message=6&all_topics=0
3-20-08 |