I am new to this message board. We have a 7 year old diagnosed with a leukodystrophy of unknown origin. Would love to hear from others in our situation. All the tests have been done and are negative for all of the known leukodytrophies. I love jacob98
I strongly suspect that an exposure to 2-butoxyethanol which would cause Chronic Fatigue Immune Dysfunction Syndrome may be in the family line.  It is a very common chemical exposure from WWII days to the present.  www.valdezlink.com/hemoglobinuria.htm
 
It is much more probably the cause of harm to the Vietnam vet ... than dioxin, etc, etc
 
I wrote to the Myelin foundation regarding ALD and shared that this is the kind of thing that this chemical would do. It causes harm to the X chromosome sometimes, and that is part of what you are looking for.  Actually it could cause the whole group of them.  The exact variation of type wouldn't matter.  I also suspect it causes many cancers that have tumors in them ... I believe if you look at all the soft tissue sarcomas, for instance, as a group ... they aren't all that rare
 
They are finding great success with many birth defects and autoimmune issues (which I suspect that this chemical causes) by using good nutrition and glyconutrients.  The nutritional discoveries of Roger J. Williams, PhD is what they are based on.  I've also found another book by Jordan S. Rubin, N.M.D., PhD  (nutritionist) who has some good helps with glyconutrients being a part of it.  Patient, Heal Thyself
 

11-22-05
I suspect it for being the cause of autoimmune metabolic problems .... many autoimmune kinds of things, actually, and that it can not only have harmed someone in the family line ... but people today can also be harmed by it.
 
I wish to make a comment on this statement (diagnosis stories thread):
 "At age 3½, Bradley had bouts of vomiting, diarrhea, high fever and
      strange behavior," said Barlow, a single mother who works as a licensed
      vocational nurse for Kaiser Permanente. "I was very frustrated. At the
      time I worked in pediatrics, yet I couldn't find out what was wrong with my child.
      "It was diagnosed repeatedly as viral syndrome, but I knew it was
      something else. I had a 3-year-old boy, and I had no answers."
      Barlow was right about the disease's being genetically linked. Although
      she didn't know about her son's ALD, the disease is an X-chromosome-linked disorder,
      which means it affects only males and is transmitted by a female carrier.

Flu-like symptoms are a sign of a 'right now exposure'  There is a strong second hand solvent exposure to 2-butoxyethanol that 'looks  like the flu' but it is not the flu - it is a chemical poisoning. There could be painting or cleaning going on ... or someone who has been exposed outside of the home ... could be breathing this chemical out in their respiration ... & fumes can get in baby's eyes.  I suspect it for being a primary cause of SIDS.  Look for blood in urine and red blood cells that are small-sized or irregular looking.   Many times with a strong exposure to 2-butoxyethanol people have abnormal blood sugar (up or down), abnormal blood pressure & hormones out of normal range.  FATIGUE and CNS grouchiness, depression, sleeplessness
 
 
My only expertise is that I recognize the pattern of this chemical's harm as I have spent a lot of time looking into it.  Someone in my family was harmed by it when he worked on the Exxon Valdez oil spill cleanup.  There are 1,000 bioremediation workers who have been harmed by 2-butoxyethanol.  It was an experiment of Exxon to find a money making new product to clean up oil spills.  These are valuable to medical science because so many times, other people harmed by it can suspect other things as causing their ailments.  If you want more info, I have organized some of my web pages on a similar discussion forum:  http://groups.msn.com/Avoid2-BEforHealth-MM 
 
Protect the eyes! & cuticle areas - Primary route of exposure for EGBE 

May all children be born healthy -  Good nutrition and food supplements such as glyconutrients are offering hope for arighting an autoimmune immune system in trials for autoimmune issues like diabetes and birth defects such as cerebral palsy.  Dr. Patrick Garrett - Kansas  Dialog   Why not ALD?

H. Reginald McDaniel, M.D.     Biography     Short Biography

Medical Director of MannaRelief Ministries

Glyconutrient Hope  What are glyconutrients?

Study Glyconutrients    Molecular Bio info - Dr Reg

A new trial open now for those with scleroderma http://www.valdezlink.com/pages/lookingfor-scleroderma-studyparticipants.htm

Angel Baby - Happy Holidays!   

Turkey Soup

11-23-05

Consider EGBE for Overwhelming FATIGUE

& lots more things that it is so far

12-4-05