09-21-2004

jacquecrawford

Banned

 

Join Date: Sep 2004

Posts: 1

  Exclamationgws (newbie) any advise?


Hello all;

I am new to the internet message board thing, so, have patience!

I'm a gulf war vet, and have many of the symptoms that have been mentioned in the other posts. My problems started during, and shortly after returning from the gulf. First were the stomach problems, diarrhea, then came the hives, skin rashes, and headaches.

After getting discharged, I was admitted to the VA hospital for tests. They didn't really diagnose me with anything, as far as I can remember, but they were more than willing to give me plenty medication. Their "medication" caused more problems on top of the problems that I already had. I put up with the medication and
antibiotics for a while, let them poke and prod me, then I finally had enough. I wasn't able to hold down a job due to the medications, and the other problems. Finally I stopped taking their drugs, and kept pushing forward on my own. It has been about 12 years since then.

For the last couple of years, the fatigue has gotten worse. I have been taking lots of vitamins to try to keep myself up to par, but they don't seem to be helping as much as they did before.

I have finally got an appointment today for a medical disability evaluation. I haven't got much hope in the VA helping me with the problems that I am having.

I was wondering if anyone has had any luck with any kind of treatment, diet supplements, etc... to help with the fatigue?

My problems/symptoms are:

Constant headaches
very bad memory loss
swollen, pain in joints
sleep problems
diarrhea
problems focusing sometimes
skin rashes, and hives
fatigue
intermittent dizziness
irritability
etc, etc, etc...

I constantly have to write myself sticky notes to keep up with everyday things that I should remember. I have to look up my children's birthdays because I can't remember them...

Any help would be greatly appreciated!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Re: gws (newbie) any advise?


I don't have a clue... but I would try a lot of yogurt with acidophilus for immune system and, Centrum "Chewable" Orange Flavored (50 Tablets); I was in really bad shape worse than I am now and that seemed to stop a certain problem I was having. I was feeling like ****! Really baaaaadddd. This helped my condition to be a little bit more tolerable. Absorbine Jr. Original "green" color for the lumbar pain from the arthritis and joint pain it really helps; Stay away from caffeine it makes the joint pains worse and much more severe! I can't hardly even help myself but I will try to help anyone that I can. Lots of food will help with the fatigue and energy robbing problem also. I don't exercise at all because it hurts me in my fragile state of sickness that I am in. I wouldn't recommend it at all with the fatigue. I walk around a lot though like through the house but the fatigue takes a lot out of me and makes things difficult.

I have all the same problems you have and many more also. It is very bad. I fell 2 days after the inoculations we got but I was very healthy and ran 3 miles a day. I came in 2nd place out of 3 schools when I was in cross country and track. But for some reason it really hit me hard. The vaccines did this to me and I noticed right away that something wasn't right. I do remember a lab tech. mention something about our problem was adjuvants disease is what it is called but no other details were mentioned. All I know is I am really very sick and no answers... I believe someone else mentioned to me that if the Government botched our vaccines then they should help us sick veterans...

I would try to do anything that you can to get better like bed rest like I do-- lots of it; R&R really helps me save up my energy so I can at least get out of the house for short durations or at least until my body acts up on me. I have limits and my wife has been getting upset at me lately because I can't work. I am a burden to her and she doesn't like taking care of a sick person. I was barely making it with a job when I met my wife and now I simply can not work due to my disability has worsened ever since 1998; I haven't worked any since 1998! I only worked light duty type jobs only prior to 1998 but was always really very sick and in 1998 I was getting worse and my body was deteriorating and I was dragging my feet a lot and tripping, etc. Certain people began to notice and things went down hill for me there-after... I also have the whole list of symptoms as GWS sufferers do. Good luck to you I hope you get better than before. I only slowed things down alittle but anything helps! I am still very sick though despite the remedies mentioned above.

You may also want to ask GOD for help if it be his will to help you. If you don't get better then maybe that is your test in life? Accept it and just try to go on the best you can. I am really messed up but I pray often and keep a open channel to GOD! You have to when you are sick as I am... You can write [ removed ] anytime if you need any advice, I will try to help if I am able to do so. From what all I have learned recently, we are in for a heck of a ride with the GWS to get any help or Social Security help! It all comes down to proof and getting a doctor to put into writing that you have GWS which is very difficult if not impossible to achieve! I plan on trying later on with this route. Those vaccines really damaged us and our bodies are really screwed up. It was catastrophic for me-- I mean the damage done!!!  

Reply #2:  Please do not ban gulf war vets   - reply by 'Dear Maggie'


jacquecrawford 

Banned

On a first post and with a request to be patient with you, I ask all moderators to give 2 warnings before banning any gulf war vet.  As you can tell by their ailments they have a lot to deal with & they need forums like this.  Someone may have help for them, and believe me there is precious little of that.

To jacquecrawford, hang in there.  Most bans are short lived, but it sure does make you feel bad, doesn't it.  I've been banned at least twice, and since then have contributed significantly to this forum.  Please read my other posts, or if you can't I'll restate them for you again here.  If you see that I get banned for what I am saying here, then, it is their loss. 

The fatigue is acquired autoimmune hemolytic anemia.  The immune system is prematurely destroying the red blood cells, but this anemia does not show up in the regular bloodwork.  Look at the reticulocyte count.  It will be higher than normal because the bone marrow is working double time making new red blood cells. ... but over time it drops and drops and drops. Is there blood in your urine?  Red blood cell counts are not the normal ratio of mature to immature ... there are too many immature red blood cells.  Are ferritin levels on the low side?  There is something going on with the proteins, not enough and that may be why the joints ache, etc.

The chemical exposure that would cause these things is 2-butoxyethanol.

It is in gun cleaners, and all kinds of cleaners; maybe in jet fuel.  You must learn what products you use today that contain such ... or you can push yourself towards the cancers ... which are multiple and which this chemical is the root cause of.  But what gets blamed?  heart, diabetes, all kinds of other secondary things. 

 

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