My extreme fatigue started about 2 years ago. It was so paralyzing that I felt I had to focus to even breath. I often had to lie down on the floor to play with my daughter (now 16 months) and my 6 year old son. My body feels like it's sleeping while I'm up, the feeling of lack of oxygen in my body and an all over body heaviness that is out of this world. Sleeping at night does good sometimes, other times not. Chronic pain in neck, base of scull, carpal tunnel in my right arm. Brain fog like if my system was in a sleep mode. I had a doc that told me to go home and take Ibuprofen. Bah! I am going to a new physician on Tuesday (one my children have, he seems open-minded) in hopes that he will hear me and not look at me like I was a hypochondriac. I have all over pain, mostly in my neck, lower back, osteoarthritis in my hands, cracking and popping knees and feet. I wonder if I may be leaning more towards CFS than FM.
Any input would be SOOO appreciated!!!

Lena

PS

I am 38, moved to the US in Oct.-97 from Sweden and unfortunately never made it back (finances, circumstances beyond my control). I have 2 beautiful children with me, 6 and 1! I divorced my daughter's father late 2004 and that was the best thing I've done in a long time (sorry to say! LOL). My mother have Fibromyalgia, everybody in my family have migraines and high blood pressure.

symptom list 08/28/05

Here is a copy of the symptom checklist that has been posted before. This list is the best thing I've found to take to the doctor and helped in my diagnosis. I cut and past into Word, then delete the things that don't apply. I add my name, and the date, then hand it to the doctor as soon as he asks what's wrong.

When I don't have a list, the dr always seems to get stuck on the first one or two symptoms that I bring up and we never get beyond them.

GENERAL
____ Fatigue, made worse by physical exertion or stress
____ Activity level decreased to less than 50% of pre-illness activity level
____ Recurrent flu-like illness
____ Sore throat
____ Hoarseness
____ Tender or swollen lymph nodes (glands), especially in neck and underarms
____ Shortness of breath (air hunger) with little or no exertion
____ Frequent sighing
____ Tremor or trembling
____ Severe nasal allergies (new allergies or worsening of previous allergies)
____ Cough
____ Night sweats
____ Low-grade fevers
____ Feeling cold often
____ Feeling hot often
____ Cold extremities (hands and feet)
____ Low body temperature (below 97.6)
____ Low blood pressure (below 110/70)
____ Heart palpitations
____ Dryness of eyes and/or mouth
____ Increased thirst
____ Symptoms worsened by temperature changes
____ Symptoms worsened by air travel
____ Symptoms worsened by stress


PAIN
____ Headache
____ Tender points or trigger points
____ Muscle pain
____ Muscle twitching
____ Muscle weakness
____ Paralysis or severe weakness of an arm or leg
____ Joint pain
____ TMJ syndrome
____ Chest pain



GENERAL NEUROLOGICAL
____ Lightheadedness; feeling "spaced out"
____ Inability to think clearly ("brain fog")
____ Seizures
____ Seizure-like episodes
____ Syncope (fainting) or blackouts
____ Sensation that you might faint
____ Vertigo or dizziness
____ Numbness or tingling sensations
____ Tinnitus (ringing in one or both ears)
____ Photophobia (sensitivity to light)
____ Noise intolerance



EQUILIBRIUM/PERCEPTION
____ Feeling spatially disoriented
____ Dysequilibrium (balance difficulty)
____ Staggering gait (clumsy walking; bumping into things)
____ Dropping things frequently
____ Difficulty judging distances (e.g. when driving; placing objects on surfaces)
____ "Not quite seeing" what you are looking at



SLEEP
____ Hypersomnia (excessive sleeping)
____ Sleep disturbance: unrefreshing or non-restorative sleep
____ Sleep disturbance: difficulty falling asleep
____ Sleep disturbance: difficulty staying asleep (frequent awakenings)
____ Sleep disturbance: vivid or disturbing dreams or nightmares
____ Altered sleep/wake schedule (alertness/energy best late at night)



MOOD/EMOTIONS
____ Depressed mood
____ Suicidal thoughts
____ Suicide attempts
____ Feeling worthless
____ Frequent crying
____ Feeling helpless and/or hopeless
____ Inability to enjoy previously enjoyed activities
____ Increased appetite
____ Decreased appetite
____ Anxiety or fear when there is no obvious cause
____ Panic attacks
____ Irritability; overreaction
____ Rage attacks: anger outbursts with little or no cause
____ Abrupt, unpredictable mood swings
____ Phobias (irrational fears)
____ Personality changes


EYES AND VISION
____ Eye pain
____ Changes in visual acuity (frequent changes in ability to see well)
____ Difficulty with accommodation (switching focus from one thing to another)
____ Blind spots in vision


SENSITIVITIES
____ Sensitivities to medications (unable to tolerate "normal" dosage)
____ Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes, hair sprays)
____ Sensitivities to foods
____ Alcohol intolerance
____ Alteration of taste, smell, and/or hearing



UROGENITAL
____ Frequent urination
____ Painful urination or bladder pain
____ Prostate pain
____ Impotence
____ Endometriosis
____ Worsening of premenstrual syndrome (PMS)
____ Decreased libido (sex drive)




GASTROINTESTINAL
____ Stomach ache; abdominal cramps
____ Nausea
____ Vomiting
____ Esophageal reflux (heartburn)
____ Frequent diarrhea
____ Frequent constipation
____ Bloating; intestinal gas
____ Decreased appetite
____ Increased appetite
____ Food cravings
____ Weight gain (____ lbs)
____ Weight loss (____ lbs)


SKIN
____ Rashes or sores
____ Eczema or psoriasis



OTHER
____ Hair loss
____ Mitral valve prolapse
____ Cancer
____ Dental problems
____ Periodontal (gum) disease
____ Aphthous ulcers (canker sores)



COGNITIVE
____ Difficulty with simple calculations (e.g., balancing checkbook)
____ Word-finding difficulty
____ Using the wrong word
____ Difficulty expressing ideas in words
____ Difficulty moving your mouth to speak
____ Slowed speech
____ Stuttering; stammering
____ Impaired ability to concentrate
____ Easily distracted during a task
____ Difficulty paying attention
____ Difficulty following a conversation when background noise is present
____ Losing your train of thought in the middle of a sentence
____ Difficulty putting tasks or things in proper sequence
____ Losing track in the middle of a task (remembering what to do next)
____ Difficulty with short-term memory
____ Difficulty with long-term memory
____ Forgetting how to do routine things
____ Difficulty understanding what you read
____ Switching left and right
____ Transposition (reversal) of numbers, words and/or letters when you speak
____ Transposition (reversal) of numbers, words and/or letters when you write
____ Difficulty remembering names of objects
____ Difficulty remembering names of people
____ Difficulty recognizing faces
____ Difficulty following simple written instructions
____ Difficulty following complicated written instructions
____ Difficulty following simple oral (spoken) instructions
____ Difficulty following complicated oral (spoken) instructions
____ Poor judgment
____ Difficulty making decisions
____ Difficulty integrating information (putting ideas together to form a complete picture or concept)
____ Difficulty following directions while driving
____ Becoming lost in familiar locations when driving
____ Feeling too disoriented to drive

Vicki

Headaches? 08/31/05

You say that those in your family have headaches and similar symptoms. The headaches you describe remind me of pituitary headaches. They are different than migraines, aren't they?

Could you go over this questionnaire?
http://www.valdezlink.com/pages/questionnaire.htm

I'm trying to help people understand 'the pattern' of 2-butoxyethanol harm. It is a very common chemical exposure in our country since 1930s & it is not blamed for anything except in the research info. It doesn't seem to be recognized by people harmed by it nor by their physicians.

If you have been harmed by it, you have the proof of its harm. The fatigue would be autoimmune hemolytic anemia that gives the right RBC counts, but the red blood cells are small sized (maybe immature); and there would most likely be blood in urine.

Margaret

8-31-05

Senator Robert Byrde was hospitalized mid May, 2009 for a suspected minor infection (high white blood cell counts may also be a sign of 'the anemia' that hides out, not an infection as is generally thought)*  *

Then Senator Robert Byrd, 91, came down with a staff infection from being in the hospital & got out 6 weeks later (7-1-09)  Anemia 'helps' for Senators Byrd and Kennedy:  

Ideas for Senators Byrde and Kennedy - Those with serious anemia  * *

Look for these clues to 'the anemia'

Consider exposure to a glycol ether for cause of 'the flu' especially glycol ether with BUTYL  *

What was different this day?

2009

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