November 11, 2005 I was shopping at the second hand store & the lady working there perked up when I said I wanted to use a large container for mixing lemonade when I have the next fund raiser for neuroblastoma.    

Alexandra Scott - a precious child! Who can understand the loss her family feels?

... like Alex, the little girl who died of it last year did 

(She was only 8 years old and had been diagnosed with it since she was one year old)
 
The worker said to me, "My son weighed 8 pounds at birth, but by the time we knew what was wrong with him, he was skin and bones. My son was born with cerebral palsy & neuroblasatoma - had 2 lbs of tumors mostly around his stomach.  We knew something was wrong because he kept throwing up all his food.  I had to teach him how to suck, and that took 5 days.  When we saw the doctors he was diagnosed with neuroblastoma tumors.  He went through a lot of chemo therapy.  Then we had the tumors on his kidneys to deal with.  My son had to have all his baby teeth pulled out because the chemo damaged the enamel.  The doctors said he might have stunted growth.  He's our miracle child, because he is alive and 27 years old now."
 
I asked her for her e-mail. And just e-mailed this info to her.  I believe that if my theory is right: that 2-butoxyethanol exposures would cause such ... there should be a lot of exposures to have such a severe situation ... and that we should find it.  I also shared that I felt there was help for her son's cerebral palsy.  A doctor from Kansas shared with me that they have had amazing results using glyconutrients ... for diabetes and cerebral palsy.
 
 
 
2-butoxyethanol can cause ... Tumors of all kinds, but especially effects nervous system, kidneys, liver, glands, hormones, BLOOD
 
 
I would be glad to overview the symptoms & see whether or not before &/or during your pregnancy there were possible exposures to this chemical;  look for those with Chronic Fatigue Syndrome in the family line (mother & father)
*

Circle those that apply:

Remember flu-like symptoms? ___ then horrible fatigue?  WHEN?

Diarrhea ? ______

Diagnosed - blood in urine? _____ When?

Eyes burning and hurting?

Fatigue signs:

These are symptoms of hemolytic anemia - what this chemical is said to cause. (Suspect autoimmune hemolytic anemia)

Loose your temper easily? 

C entral Nervous S ystem *   damage 

(partial list of clues for this)

  • Short term memory loss

  • Difficulty concentrating

  • Personality changes to 'grumpy' - Extreme Irritability 

  • All the time Depression

  • Suicidal Tendencies

  • Difficulty Sleeping

  • Mimics true psychiatric disorder  *

  • Autonomic nervous system disorders like NMH (neurally mediated hypotension),

Any hormones out of range?

  • Loss of interest in sex?  Libido very low

    Any abnormal sugar - high or low

    Abnormal blood pressure?  high or low

    Growth abnormalities (or as birth defect) Fractured bones - growing again as an adult

    Body Temp variations ?

    Thyroid problems?

    Burning foot syndrome?

    Premature menopause?

 Headaches - worse than a migraine

Any swollen, enlarged glands ? Organs ? such as ovaries, testes, heart, pancreas, spleen, thyroid, uterus

Teeth fall out?

Bladder problems ?

Loss of hair?

Loss of taste ?  Loss of Smell?

Mitochondrial diseases

Look/Feel Older than your years?

Keep getting pneumonia?

SKIN: dry, leathery skin (defatted)?

Nosebleeds?  _____

Internal scaring?  

 

Any autoimmune diagnosis 

... especially autoimmune metabolic issues?

Valdez, Alaska

11-11-05

Sometimes Birth Defects show up in different ways