Quote:   A hopeful e-mail I received yesterday: "Mother Margaret, I wanted you to know that we beginning to develop some research programs for patients. It is a combination of clinic and physician/ nurse efforts. We have a company that we are doing a pilot research for regarding glyconutrients and diabetics/medical expenses and prevention. We are in works for another pilot study regarding cerebral palsy. I have also put together a Biblical principles of health and wellness lecture for pastors in our area. This is very exciting because of the dramatic improvements we see in our clinic using glyconutrients. I would be appreciative to hear what you have in mind for research." God Bless, Dr. Patrick Garrett PS 5-10-05 Margaret, Our study is aiming at 90 subjects in 9 different groups with the minimal being 45 subject. We usually tell patients that it will take 4-6 months before they see some major changes but all of my patients thus far have seen major changes with in weeks. Very exciting time to be practicing. I have had some of the most amazing results with cerebral palsy children and brain damage. We have had lung cancer, diabetes and others have great results too. Thank you for the information, too. Patrick

My reply: I am pleased to hear you are having good results using glyconutrients & would be interested in hearing more of your plans.

Dr Reg of Mannetech was willing to provide glyconutrients for free to a pilot study group. I believe he was aiming at the 'gulf war vets  syndrome' group. I have a doctor from that time period who has expressed interest in helping, but his plan would need some funds to do the pre-trial and exit trial monitoring.

He shared his model with me here

I would like to see several sub groups who have CFIDS with direct exposure to 2-butoxyethanol which I believe to be the cause of such, but if seldom, almost never suspected of it

There are current military affected; there are those who are gulf war vets of 90-91 & even those of the 1989-1990 EVOS cleanup that should be interested.

I would think that anyone who lived anywhere could participate. They would need the same questionaire and medical check up to start (A< B< C< D) this assortment of checks to find the fatigue this chemical causes.

Most likely some other items on this list, but I don't know which are most applicable

Any from these groups

Consider these things, as well

I would hope to find out whether or not 2-butoxyethanol chemicals are the cause of these autoimmune issues in many cases (& the cause of CFS/CFIDS/FM) It brances off into so many other things, that the focus has been on things such as IBS, Chron's, arthritis, tumors of all kinds in many, many locations ... that the fatigue is not found.

And the Exxon Valdez oil spill cleanup workers, especially those of the bioremediation experiment and the Corexit trials are vital to this. Some US Coast Guardsmen, DEC, and Navy from that time-period, too

Some are already asking, "Will there be a study?"

How long does it take to see help using glyconutrients?
How large a group of participants are necessary?

Could a trial work along these lines?